Trying out blogging...

Well here I go.  Trying out blogging.  Why not?  I need to write a little more.

Allow me to introduce myself.  My name is Lacynda Mathes.  Lacy.  I am closing in on 43.  I waited until I found the right man to get married, and I wasted my youth on being single.   I met David online way back in 1999, on Excite.com in the film trivia chat room.  It was love at first...uh...sight...sorta.  Anyway, we talked online and on the phone for months...9 to be exact.  Then we met in person.  I traveled from DC to Chicago to meet him.  In 2001 I made the move from VA to IL.  Quit my job.  Left my family.  Made my own life.  In 2003 David and I were married.

On June 23, 2006 we gave birth to our first son.  At 4 1/2 months of age, he started having seizures.  He was diagnosed with Infantile Spasms, a devastating form of epilepsy in infants, also known as West Syndrome.  It was a terrible time in our life.  Terrible and wonderful.  We love our son so much.  His problems were just part of him.  And loving him meant neurologists and hospital stays and EEGs and therapy and learning a whole new language.  But love is love.  He is the light of our life.  His name is James William, Jimmie, after my father and David's father.  He is beautiful. 

At 20 months his diagnosis changed to Lennox-Gestaut Syndrome, another devastating form of epilepsy in children, associated with multiple intractible seizure types and mental retardation.  I hate that word.  I use developmental delay, but that isn't quite right either.  Delay makes it sound like he'll catch up.  He won't.

In 2009, we welcomed our second son, Charlie.  He's two now.  He's wonderful too.  And loved so much.

Well, that's who I am.  We'll see if I can do this or not.